Psychosocial factors of primary caregivers of adults with Alzheimer's disease and other types of dementia: A comparison between the U.S. and India
Sarang, Asmita Pradipkumar
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Alzheimer's disease (AD) is the most common form of dementia in the United States, and approximately 4.5-5 million adults and in India, four million of adults are diagnosed with AD, and 85% of them are cared by the family members. The purpose of this study was to identify the psychosocial issues of caregivers of home-based adults with dementia in India and the U.S. through a survey using personal interviews, employing a cross sectional design. The study was conducted with 50 caregivers of persons with AD and other types of dementia in Bombay which is the largest city in India. In the U.S., the data had been collected from 50 caregivers in Buffalo, NY. The instruments used were: Center for Epidemiological Studies- Depression, Zarit Burden Scale, Picot Reward Scale, University of California at Los Angeles Loneliness Scale, Global Deterioration Scale, and the Social Obligation Scale. Independent t-tests, Pearson correlations, and regression analyses were used for data analyses. The results showed that the amount of burden and loneliness experienced by American caregivers was much higher than that of Indian counterparts. Severity of depression was the same in both the countries. One of the reasons for having a better outlook in Indian caregivers may be the lifestyle pattern and perception of caregiving in India. Occupational therapists can contribute towards involving more family members in assisting the primary caregivers. The family involvement may help the caregivers in reducing the negative outcomes of caregiving. In future, more comprehensive studies with a large sample size are encouraged.