Perceived Barriers and Needs Among Survivorship Care Clinic Coordinators for Transitioning Adolescent and Young Adult Cancer Survivors to Primary Care Providers
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Background: Insufficient research and a lack of information exists regarding how to best transition adolescent and young adult (AYA) cancer survivors aged 15-39 years from survivorship care clinics (SCCs) to primary care providers (PCPs). Objective: To qualitatively explore perceived barriers and needed resources for transitioning AYA cancer survivors to PCPs among AYA SCC coordinators working at National Cancer Institute-Designated Cancer Center (NCI-DCC) SCCs to promote continued quality and continuity of care. Methods: Semi-structured interviews were conducted with 11 NCI-DCC SCC coordinators. Interview questions were developed based on findings resulting from a review of the literature on AYA cancer survivorship, the first author’s personal experience as an AYA cancer survivor, and guidance from two cancer nursing experts on the study team. Reflexive Thematic Analysis was used to analyze data. Results: One overarching theme, Cancer is a Lifelong Responsibility, and four key themes, Adopt More Effective Methods of Communication, There needs to be Survivorship Education, Just Making Sure They Don’t Fall off the Radar, and Research in Survivorship is Important, were generated. Conclusion: Participants agreed that AYA cancer survivor patients have unique healthcare needs that would greatly benefit from improved SCC-PCP communication, PCP AYA cancer survivorship education, and use of a standardized and universal survivorship transition plan Implications for Nursing: Future research is needed examining AYA cancer survivorship communication, education, psychosocial care, and alternative and integrative interventions.