Recommendations for Mental Health Screening and Monitoring in Hemophilia Patients
Zhang, Jiao Jiao
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Background and Significance: Hemophilia is a life-long hemorrhagic disease characterized by a deficiency in coagulation factor VIII or IX. The recent development of novel therapeutic agents has helped to prolong the lifespan of patients. However, the unique challenges to mental health associated with this disease remain poorly understood and managed, especially in light of the increasing chronicity of disease. Purpose and Aim: The purpose of this Doctor of Nursing Practice (DNP) project was to provide the staff of a hemophilia center in Buffalo, New York with evidence-based recommendations for the screening and monitoring of depression and anxiety of hemophilia patients as well as mental health via an educational PowerPoint video presentation. The aim of this project was to increase knowledge and understanding among staff working in a hemophilia clinic regarding how to screen patients for depression and anxiety and how to refer patients for mental health counseling when warranted. Theoretical Framework: Parse’s Human Becoming Theory acted as the project theoretical framework. Methods and Design: An extensive review of evidence-based literature regarding screening tools used to assess mental health and quality of life in hemophilia patients was performed. Information collected from this systematic review was synthesized and guided the development of the educational PowerPoint video presentation. The presentation was content expert reviewed by the DNP Project Faculty Advisor and content experts at the project site prior to distribution. Results: The educational PowerPoint video presentation was distributed with project site permission via email to the staff working at the hemophilia clinic.